Patients lives matter

DEATHS LIKE THIS HAVE TO STOP.

High Court hearing questioning CQC over the death of a father’s baby taking place on 19th May 2026 at The Royal Courts of Justice, The Strand, London, WC2A 2LL at 2:30pm.

My name is Jay Patel.

After nearly three years, I am fighting for justice for my son, Balram — my baby — and for thousands of disabled, seriously ill and voiceless people whose warnings are too often ignored.

I am a litigant in person. No legal team. No medical expert team. Just a father, on his own, bringing the system before the Court and statutory bodies to answer.

This is not a game. This is real life. Real loss. Real evidence. Real families. Real systemic failure.

Before reaching this point, it has taken nearly three years of relentless lawful effort: the formation of the Patients Lives Matter Foundation, nearly 45,000 people supporting the campaign, media coverage, thousands of hours of evidence gathering and analysis, complaints, applications, legal documents and court filings.

This is not a single isolated complaint. It is part of an extraordinary lawful accountability process being pursued by one father, acting as a litigant in person, for his child.

That process has included Judicial Reviews, urgent court orders, NHS Trust governance routes, regulatory routes, safeguarding routes and international human-rights submissions.

That is the scale of what it has taken for one father, acting alone, simply to force public bodies and regulators to confront evidence, answer lawful questions and explain decisions affecting disabled and vulnerable people.

The failures alleged are not isolated. They are systemic.

Balram loved life. He loved everyone. And everyone loved him.

The issue before the Court is not simply whether CQC produced a document called a “decision”. The issue is whether CQC made a lawful determination.

This is about whether disabled people’s lives are treated as fully equal.

It is about whether families who speak for those who cannot speak for themselves are heard — or dismissed, delayed and shut down.

For Balram.

For my son.

For every patient whose warnings were ignored.

The High Court process is now beginning.

The truth must be confronted.

If you feel something must change, please help us.

Attend the hearing.

Make it known that your views count.

Individually, we are often ignored. Together, we may be able to change things.

Please feel free to email me and I would try to help you if I can.

jay@patientslivesmatter.co.uk

Updates on the court cases will be displayed here at:

https://patientslivesmatter.co.uk/

If you wish to support us please visit this page:

https://chng.it/J5mVXZNhTq

OUR STORY

We are Mummy and Daddy of Balram Jayesh Patel. Our son was 30 years old and passed on 9th August 2023 with 6 life threatening conditions and throughout his life about a dozen others. He was developmentally delayed and was at an age of a 8 to 10 year old from “an understanding” point of view and was our baby. He was happiness personified, loved life to the fullest and made everyone he came in contact with happy, as well as those that didn’t even meet him but just heard his voice or knew about him. He had a number of challenges in his life and he was probably hospitalized for over 1 ½ to 2 years of his life.

We are deeply saddened for the loss of our Balram but we are mortified that he passed in a huge amount of unnecessary pain, before his time and this was due to the lack of care, inappropriate medical treatment, and delay in appropriate treatment. A coroner's investigation has now been opened by the coroner and the coroner is investigating the delays in Balram's treatment and the treatment itself.

Please help us by signing and sharing our petition. It will not cost you anything to sign:

Our petition on Change.Org:

https://chng.it/J5mVXZNhTq

PATIENTS LIVES MATTER Because Patients Lives DO Matter

OUR STORY

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PATIENTS LIVES MATTER Because Patients Lives DO Matter

OUR STORY

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Please Help Our Cause

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